I thought about titling this entry "Beware the Ides of March" but thought the chosen title was more appropriate. Yes-- you're reading that right. Madeleine was transferred last night to Children's Hospital in DC as Dr. Lotze at Holy Cross was convinced that surgery was a likely option and she didn't want to delay the transfer any further. Make no mistake about it: this decision likely saved Madeleine's life and is yet another blessing we've received. Kirsten and I showed up at Children's around 10:30 last night and were told that we shouldn't expect much changes in Madeleine's care over the weekend as the doctors intended to monitor her condition to determine when surgery should be conducted. At a little past Midnight, we were getting ready to go home for sleep when the attending surgeon, Dr. Chahine, stopped by to examine Madeleine and to review her X-Rays. Much to our surprise, Dr. Chahine told us that he wanted to operate immediately. He explained that it was an extremely complicated decision and while he respected the previous decisions to hold off on surgery, he feared that waiting provided few benefits-- he was convinced that at least a small portion of the intestines was damaged beyond repair-- and the negative side of waiting posed a huge risk of infection. Kirsten and I were initially skeptical of this decision but after a lengthy discussion, Dr. Chahine convinced us that his argument made sense. He essentially argued that Madeleine was as stable as she was going to get last night and that while waiting might have allowed them to learn more and better prepare for surgery, he couldn't predict a tipping point where a potential infection and/or heart issues would make the intestinal surgery more risky and/or impossible. Faced with these choices, we agreed with Dr. Chahine's decision to operate last night.
This was the second lucky decision of the night as the surgery revealed that Madeleine's entire lower intestines were damaged beyond repair and needed to be removed immediately. This removal sounds (and is) pretty major and honestly, we're still trying to determine the long-term impacts of this removal. While there is no doubt that this presents future challenges, we're convinced that Dr. Chahine saved Madeleine's life last night and we can't help feeling extremely lucky.
In any case, we just wanted to get a note out to everyone so that you're up to date. We should let you know that while Madeleine is stable right now, this surgery poses a large infection risk and we've been warned that for the next 48-72 hours, Madeleine will be in a critical state. We're confident in her ability to recover but know this is a going to be a very lengthy recovery-- the initial diagnosis is that she'll be hospitalized in the NICU through June or July. They don't know if this is accurate but they wanted us to be prepared for the months ahead. On a brighter note, the doctor was absolutely convinced that
I'm sure many will ask how we're doing, so let me address that question before signing off. Madeleine is doing as well as can be expected-- the nurses have already begun describing her as "feisty" without her prompting. (seriously) Kirsten is a rock-- she absolutely amazes me. I won't lie about my condition-- this new dad is having some serious emotional issues-- I held up okay through surgery but I'm near a nervous breakdown right now... this dad stuff isn't near as easy as TV portrays it.
Have a good day-- please enjoy the weather and keep our little girl in your thoughts and prayers....
B & K
Saturday, March 15, 2008
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16 comments:
Hang in there, Brent. All I can say is "mornings are wiser than evenings." After more sleep, it'll get easier. You both are holding up amazingly well, and Madeleine is going to pull through with flying colors. We're rooting for you.
--Emma
Oh Brent, I wish I were there to give you a hug. ALL of our thoughts and prayers are with you, as I'm reading the blog daily. Madeline sounds like a real fighter, (I wonder where she got that from?!) and I know sooner or later things will start to look up. All my love to you and Kirsten-Tara
Stay strong Brent - I know it is easier said then done....
The little tough cookie made it through a major hurdle last night and she is going to keep on fighting!
Thanks for all the updates - even when I know it is difficult to write. I check here often as I am thinking about you guys all the time.
Please give a kiss to those two very special ladies in your life and hang in there - it is not easy being a dad - just ask Normie! :-)
Carrie
Hi Brent, I am so happy to hear that the surgery was successful. My prayers are with you, Kirsten and especially Madeleine. I know writing your thoughts down can be helpful during emotionally traumatic times. And, it's essential that you get your head clear by proper sleep. I can't emphasize the importance of sleep enough!!! Do whatever you need to keep yourself healthy. Stay strong and keep the faith. Love to you, Kirsten, and Madeleine....Jim W.
Our prayers are still coming your way. She will pull through, we truly believe that. Isn't it amazing what children do to us? We find out how emotional we can truly be.
-Theresa C.
Hang in there, Madeline is definitely holding up to her fiesty nickname. You're Treasury family is all sending our strength and prayers to you.
--Val--
Brent and Kristin - our thoughts are with you and your family - take care of yourselves and know that your little girl is so very luck to have such fabulous parents.
Katherine and David Hubley
Brent, you guys are being absolutely AMAZING as is our new little addition! We love you guys so much. Remember a good cry can do wonders, Jen's had a few (and by Jen I mean me) since this whole thing started. Then you dust yourself off and get back in the game. These are the best and worst times of your life. One day they'll be in the past and, as we're all praying, we'll have a safe and beautiful Madeleine to make it all worth it. Someone we will all love forever.
All our love, Andrew + Jen
Down here in Marietta, GA we are glad to here that the surgery was successful and we will keep Madeleine in our prayers given the risks that remain.
-Andrew, Tonya and kids.
Kirsten & Brent, We love being able to check in and see how everything is going with your family-Thank You for the updates! You have been on a rollercoster ride of emotions and we are so proud of how strong and courageous you both are. As others have stated, you and Kirsten need to take care of yourselves and get enough sleep to function. You know we are praying for all of you. Love and hugs to all of you,
Barb and Mark
Brent, Kirsten and Madeleine, You are in our prayers. I enjoy keeping up to date with all that is going on. I have a small idea of what you all are going through. You have a fiesty little girl there who is a fighter. Please take care of yourselves as well as Madeleine. You all are a blessing to this family.
Sarah, Jimmy, and our 31 week miracles Hannah and Sydney Brown
Brently, I KNOW you are strong enough for all this!! Sleep is a wonderful healer, so try to get some good sleep tonight. Kirsten, you ROCK, but you need sleep, too. Everything will seem better in the morning. We love you guys & are praying for you all!
Love ya,
Mike, Wanda & Boys
Kirsten and Brent,
We are amazed by your strength. Thank you for your willingness to keep us informed about Madeleine's health. Please know Madeleine is in our prayers. We are thinking about you constantly.
Love,
Jill, Mike and Avery
What can I say that other, more articulate, bloggers have not already said? I can only add my thoughts and prayers to theirs and those of Madeleine's paternal granddad, from whom I have also had regular updates. This must be so hard, and I am so sorry. All will yet be well.
Esther
Brent and Kirsten,
Charlene shared your news with me. I am thrilled for you both and know that Madeleine will be strong for all of you! I hope mom and dad are getting a bit of sleep, too! Bless you all.
Debbie Trent
Brent and Kirsten, hey it's Colleen Griffin. Laura Stahl sent me an email a few days ago with your link. I just went through and read every bit of it. I have been thinking about you two and your beautiful baby girl nonstop.
I love that she's fiesty, because it means that she has already inherited some of the Bushey-Wright traits! And perhaps someday, she'll be a great little soccer player with those kicks she was giving the nurses. : )
Madeleine is no doubt a wonderful Easter blessing. Eric and I will continue to pray for all three of you, that God continues to provide you with strength during these times.
Take care. Your friend, Griff : )
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