Just a quick post to keep everyone updated. We were told this morning to expect that Madeleine would be transferred to Children's Hospital in DC for surgery on her intestines. The doctors were frustrated that they hadn't seen any change-- nothing is getting worse but they still don't see much change in the X-Rays. Still, they told us that the ultimate decision rests with the surgeon. We just finished meeting with the surgeon and she doesn't feel that surgery is necessary... yet. She explained that with NEC, there are three groups of patients. Some get NEC and once the doctors treat it, they improved quickly. The second group gets NEC and it progresses quickly to the point of needing surgery-- this usually happens within 1-2 days. Our dramatic little girl falls into the third category-- the smallest group-- that improves to the point where surgery isn't quickly needed but where she doesn't fully recuperate. At this point, we're prepared for anything. It is entirely possible that Madeleine will improve on her own and won't need surgery. At the same time, they will monitor her very closely and if she shows any signs of distress-- negative readings in her blood (acidic or poor gasses), discoloring on her belly, or any signs of perferation in the X-Rays, they will immediately ship her for surgery. Sounds like a fun weekend, eh? We'll keep you posted as information comes in. As always, no news is good news. Have a good Friday.
Brent and Kirsten
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3 comments:
You are two amazing parents - your blog (in the medical world "documentation") is so thorough. Your little girl is so lucky to have such a special Mom and Dad. You are doing a totally awesome job as parents! Katherine
"Don't stop believin'..."
Love you- Becky & Steve
B & K-Still trying to post comments. Let me know if this works. No change is encouraging from our vantage point. Love-Mom (kay)
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