Update

Madeleine is doing very well and you would hardly know she had major surgery a little over a week ago. Sunday was a bit rough as we did not have the the perscriptions filled from discharge and as a result Mommy changed 15 - 20 diapers Sunday from 8am - 7pm. It was really unbelieveable. Now that the meds are on track we are on a much more normal schedule! She slept a lot over the weekend but yesterday was back to her old antics of barely taking any naps.

She had OT this morning and as Brent and I were walking out she was practicing her tummy moves- I can't believe she is tolerating it already. We have not weighed her since the surgery but she has lost some weight, mostly because she had really no calories for 5 days after surgery. She'll find it I am sure.

Today marks the one year anniversary of the tracheostomy. While difficult to adjust to and life changing in terms of the technology and nursing that it comes with, we credit it for being the one thing we did to turn the tides on her health issues. After the trach it has been all up hill, with a few minor bumps in the road.

We are thrilled that the surgery and hospital are behind us and as long as we can all stay healthy we have a quiet period ahead! I'll still make good on my promise for pictures...