Madeleine's lab work came back this morning and her infection is on the retreat. She's still on antibiotics and her numbers are still elevated, but everything came down significantly since yesterday. Additionally, we had a major milestone last night as Madeleine fed from a bottle for the first time. It was pretty cool to watch-- Kirsten inserted the bottle and Madeleine sucked on it like a pacifier and then paused for a moment with a look like "what the heck, this thing feeds me?" and then she sucked it down and fell immediately to sleep. It was just a small amount and we expect some ups and downs but the plan for now is to practice with the bottle once/day and gradually increase it. In addition to feeding, the cardiac surgeons decided to remove the heart "leads" as they decided that the risk of infection outweighed the very small chance that Madeleine will have heart arrythmia issues. So... to recap, feeding is going great, the infection is going away, and Madeleine has two less things sticking her. All in all, things are going very well. We're hoping for a steady increase of food over the weekend, continued resolution of the infection, slow wean from the nasal canula (down to 2 mls), and not much else.
Have a good one.
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About Me
- Brent Bushey, Kirsten Wright and daughters
- Hyattsville, Md, United States
- This blog is designed to chronicle the lives of our family composed of two daughters, Madeleine Eva and Charlotte Elizabeth and my wife, Kirsten and myself. Madeleine was born in March 2008 and is fun loving child with down syndrome and a complicated medical history. Charlotte was born on July 11, 2010 and her parents are slowly getting acquainted with her.
4 comments:
Yay, yay, yay! Thanks for the great update. Love the new slideshow at the top, too! Hope the good news continues through the weekend! Terra at DAP
YEAH!!!! What a wonderful way to end the week! I'm so excited to see that she is doing better and that the bottle feeding has begun. She is adorable in the new video. I can't wait to hold her and tell her what a little miracle she is.
Love you guys!!!
Alison
Three cheers for Madeleine! Keep it up!!!
I hope to hear more "Brent voices Madeleine's thoughts" as the one where she discovered the feeding aspect of a bottle made me laugh out loud. Have a good weekend, you guys.
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