I don't have any pictures from this morning-- just was too busy talking and playing with Madeleine-- but for the first time in a week, Madeleine looks healthy. When she's sick, she is much more "floppy" and is just kinda out of it. Today, she seemed a little more with it and just felt normal. That look corresponds with the data that we have as a morning X-Ray showed that her intestines are back to operating normally. We expect feeding to begin later today-- they're still waiting for one surgeon to weigh in before finalizing the feeding amount-- but so far, everything seems to be going very well.
In addition to feeding Madeleine, we expect that her nasal canula will be removed and I'll try to take pictures after work. I don't like pictures with the canula as there is so much on her face. The only major area of concern for today is getting a central line into her. Madeleine is currently getting her antibiotics and nutrition through a normal IV line. The problem with IVs-- especially with babies-- is that they tend to fail after a few days and the doctors want something more permanent in the event that they have to give Madeleine food or medicine. Previously, Madeliene had a PIC line in her left arm that extended to her heart. This line lasted about 11 weeks but failed on Monday. The nurse practitioner was able to get a new PIC line in on Monday but it failed on Wednesday and since Wednesday, they've just been using the normal IV. Today, they'll try again to insert a PIC line. If this fails, they've raised the possibility of inserting a broveac (sp?). This is a surgical procedure where a line is inserted into the heart. It was briefly explained to me this morning and the nurse practitioner assured me that it is fairly common and safe but with the events of earlier this week, we're wary of any new procedures and hope that the efforts to insert a central line prove fruitful.
Other than that, our goal for the next few days is to get Madeleine feeding as quickly as possible and to start fattening her up. We don't have any plans for surgery at this time and really, won't do much for at least a week-- probably closer to two weeks-- until we can see how she is growing and developing.
That's all-- have a good day.
Brent and Kirsten
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1 comment:
We are happy that Madeleine and both of you are doing better. You have been so stable through all of the ups and downs. God is answering prayers for that sweet baby. "One day at a time is easier said than done".
We are proud of you and your courage and outlook. XO Gram B.
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